First, the good news. I managed to get last week’s CD4 results, instead of having to wait until late February. I worried they’d followed the same downward trajectory – they didn’t. My percent stayed the same at 26%, but my absolute was at 567, up from 447. I was worried they’d be in the lower 300’s this time (I’d lost app. 100 per quarter last year) and all this palaver over being evicted would push them even lower. As you may imagine, it was a relief to find out I still have plenty to spare. Those numbers were a very bright and welcome spark in an otherwise murky week.
Thursday morning I arranged for additional letters from my consultant in Liverpool and my GP on the Rock, so hopefully I’ll not end up in another damp house and/or too far from the shops. (I don’t have a car) Next, I took advice from a duty social worker – the closest thing to a case worker available to me. Manx law is a bit different from English law and while I do have some rights in the situation, I don’t have many, so I have to tread carefully or I could end up on the streets.
Thursday afternoon brought a meeting at the Town Hall with the town clerk (like a mayor, but not quite), a commissioner and the head of the works department. I’ve never met this particular commissioner before and I thought I was in for a bull-dozing, but she turned out to be quite fair and open minded. The head of the works department really fought my corner, which surprised me no end. I take back everything I ever said about him when I was an apprentice under him years ago. (hehehe….. )
The outcome of the meeting wasn’t much – I still have no idea where I’m going, aside from the Bed and Breakfast I checked into a few hours ago. On the up-side, I know I have at least one person looking out for my best interests and I think possibly two, counting the commissioner. They were both against the town clerk’s idea of moving me into a house I couldn’t actually have, temporarily and with little more than a mattress, toothbrush and kettle. They’re both insisting I stay in the B&B until suitable housing is found.
Today I spent chasing down the correspondence and cheque I should have received – but didn’t – from the DHSS. Still none the wiser on that score but hopefully all will be revealed – and paid – on Monday when my adjudication officer is back from personal leave. I also spent time chasing down the letter from my GP that wasn’t ready – but that’s a whole story in itself, involving small-town medical practices and the locals who staff their offices. ‘nuff said.
This evening, I checked into the B&B. It’s owned by a lovely couple and the room is beautiful. I admit I was more worried about the people than the accommodation – I was afraid they’d be taciturn and fussy and I’d dread having to go there every night. After chatting with the woman, I know it’s going to be ok, even if I end up there for some time. To be honest, I think she was as relieved as I was when we met. I’m not sure what the blow-hard in the town hall said to her, but I had the impression she was expecting me to turn up on the doorstep semi-inebriated, with two garbage bags of possessions and a bottle of Jack Daniels under my arm.
After checking in, I came back down to my flat to watch telly, catch up with some emails and write this update. I spent some time reading Jonathan’s and Regan’s blogs and got a healthy dose of perspective. The knot in my stomach is finally starting to unwind. This is starting to feel do-able, something that seemed near to impossible a week ago when this whole thing started. Some of the thoughts and feelings I’ve had this past week reminded me of being newly diagnosed - the word ‘vulnerable’ pops into my head. I don't like that it’s gotten to me so much – there was a time when I’d have taken it all in my stride. Knowing there are people on my side, both here on the Rock as well as in cyberspace, has made a huge difference though and I think I would have been even more of a basket case without the support I’ve had. Thank you - all of you.





Glad to hear about your absolute & percentage. Nice! Oh and the nice B&B and having people pulling for you. So important, especially on a little Rock right? Good luck with the DHSS stuff. Your attitude seems very stable and it will be key to getting you through this. It will be worth it when you're all settled in whereever
ANN ITS REALLY NICE TO KNOW YOU GOT SOME PEOPLE OUT THERE FOR YOU.AND IM GLAD YOU ARE DOING VERY WELL.
IN MY COUNTRY ITS NOT SO EASY FOR POSITIVE PATIENTS BUT THE GOVERNMENT AND THE US GOVERNMENT HAS DONE A LOT FOR US AND WE ARE REALLY THANKFULL TO THEM. INITIALLY TYHE TREATMENT WAS SO EXPENSIVE AND THE TEXT WAY OUT OF REACH BUT NOW EVERY THING IS FREE AND EVERY ONE IS DOING WELL,UNFORTUNATELY NOT EVERY BODY KNOWS ABOUT THIS VIRUS IGNORANYTLY THEY LET PEOPLE DIE THTS THE POS RELATIVE WITH THE BELIEVE THAT ITS IS WITHCHCRAFT OR POISON AND ALL THAT BUT I BELIEVE THJAT SOONER OR LATER EVERY THING WILL BE ALRIGHT.
IM COMMENTING FROM LAGOS NIGERIA.
Hi my name is Xaviana,
I couldn't find your e-mail but I was wondering if I could possibly use your picture for an aids awereness day I have planned at my school. We are taking several pictures of people and saying there names, if you do not wish I will not be using it. Thank you for your time.
Xaviana Aleman
Thank you for such refreshing words. I also lived house 2 house 4 so many years that i would just like 2 forget it ever happened. I am wat u call a closet aids case 4 almost 22years. Wen i lived in NY i had no problem rrevealing my status, but now i moved 2 sunny south florida, where life is a redneck and its not the kind of thing u like 2 put out there. If u r ever in the south florida area, look me up, i would love 2 meet u and have a spot of tea. Thats wat u brits drink wen socializing. i wish u all the luck in ur housing situation, and i would like 2 compliment u on ur writing. Keep up the blogging. I will definatly check in from time 2 time thx 4 ur honesty. Take care
Hi Ann,
My heart goes out to you. You really have been put through it recently. I wish you well and trust that things will begin to run more in your favour.
I would very much appreciate your contacting me. I am going not positive, but feel I may have become infected very recently. Coincidentally, I may well be moving to the Isle of Man with my family soon. Any advice you can share with me would be very gratefully accepted.
My email address, should you want to contact me, is:
jhsmarriott@hotmail.com
Best wishes,
J
Goodday Ann
Just registered and was reading up on your writings and thought to say hello to you and yours.
Glad to see that your up on (things) be of good-cheer and goodhealth.
:o)
Hello,
You don't know me, but I have signed up to run the National Aids Marathon on November 25th to raise money for the San Francisco Aids foundation, one of the leading providers of AIDS services the Bay Area.
The AIDS epidemic is far from over. More than one million Americans, and 40 million others around the world, are now living with HIV, the virus that causes AIDS. In fact, approximately 1 in every 50 San Franciscans is living with HIV/AIDS. The money we raise will support HIV services and prevention programs in Alameda, Contra Costa, Marin, San Francisco, San Mateo and Santa Clara Counties -- to help keep people alive until there's a cure. A portion of the funds will also support treatment access in the developing world.
This is why I am committed to raise at least $4200 before Auust 4th, although I would like to raise even more. I'm asking for your support. Any donation you can make to help me meet my goal would be most appreciated! It's so easy to make a donation, just click on the link below. It only takes a few moments to make a contribution that could enhance the life of someone living with HIV/AIDS. Please forward this to anyone else you think may want to contribute.
Thank You,
Maryam Abrishamcar
Just click the link below to donate :
http://www.aidsmarathon.com/participant.asp?runner=SF-5271&EventCode=FL07