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substance

| 13 Comments

Ghosts appear and Fade Away
-Colin Hays (men At work)

Benjamin ferret walks with a waddle, dragging his hind quarters a little. He has advanced adrenal disease, and even a melatonin implant does not seem to be quite helping. Surgery would help, but that’s something I cannot afford… and to be fair, something many vets would think foolish on a six year old ferret. He is a trooper though, and whenever he senses I am close, he waddles up to me and assumes the baby position for kisses. Funny how my old man is acting like an infant now, in the twilight of his time on earth.

I suppose we all do that.

I have been sick for the last few weeks. Aw who am I kidding, months. I have finally gone beneath a detectable level of T Cells, and though I have been prescribed a new regimen, I have not taken a pill yet.

This is not slow suicide. This is not a conscious nor an unconscious effort to shuffle off this mortal coil (as coils go, am quite fond). Its just a desire not to feel bad, which despite my IQ and education, remains the primary impetus for all my life’s choices.

Do more stuff that feels good. Less stuff that don’t. Lather. Rinse. Repeat.


Might this philosophy kill me? Sure. Doesn’t life, as a philosophy, kill everyone eventually? It does. Yes it does. Does too.

Thing is, I like my ferrets. I like my friends. I like my family. I like my life. None of these things are without serious dysfunction. But they are mine to dys-function in. They are mine to enjoy, and cuddle, and call at odd hours of the morning. To be fair, the ferrets usually let me go through to voicemail after three AM or so. Thing is, this is what AIDS is like. It’s what it does. At least, its what it does to me. And this blog is, by it’s nature, AIDS specific.

I have been in isolation mode for the last couple of weeks, getting treated for a fungal infection. And you know something? I kinda dig it. The isolation, not the infection. I kind of like the idea of only a select few people knowing my stuff, only having to explain myself (or the absence of myself) to a few people. Not feeling guilty for the crime of having slept twenty hours.

Benjamin ferret is spry, for an old guy with cancer. He has sores on his belly from the cancer. He sleeps an awful lot. But you know, when he is awake, he is cheerful and fine. He walks around, surveying his domain, putting the upstart Duncan in his place, and making sure that all is still fine in the world he can investigate.

I get that. I do.

I just put my hand down from the futon, and Benjamin crawled up onto it, looking to kiss me. We made out for a moment, then he had other things to attend, and waddled off.

We do that. We waddle off, after touching base with the creatures we love. We let them know, and remind ourselves, that we are all still viable, potent, and alive. And then we waddle off, sores and hormonal rages and sickness carried within us like a potpourri of sickness and death, to investigate and make sure of our worlds. Our worlds might be small, and our sickness might be large.

But we have what we have, and we love whom we love. And our worlds, they are our treasures, our selfish pleasures. We need them for reasons we cannot always articulate. We need to know they are there.

I am lucky beyond measure, because my needs are met. Not my wants, seeing as how wanting to be healthy and without stain are among those wants. But the needs, shelter, food, entertainment, pets. These are here.

These days, that is enough. More than.


13 Comments

I know this will sound strange, but I just needed to say thank you. Sometimes the things you write reverberate in ways that haunt me and make me reexamine myself.

I really don't know what to say about you health wise right now - I appreciate that you are making the right choices for you. I know that last sentence seems kind of lame but the fact of the matter is I feel sort of awkward as to what to say here.

You are in my thoughts.

You are in my thoughts as always, Jonathan. You are a lovely writer and I wish you and your ferrets well.

Jonathan,- Please take your meds...(i know that I will take crap for this) I know you're a buffy fan and hopefully Angel...the last episode is "will not fade away". You cannot...and if you remember, the episode was they strategically used every tool and faith to fight the good fight.

Damn it, man, WE NEED YOU, as part of our team.

God Speed.

Cammille07

I decided to try again to work out how to comment here, because I just had to say: I love you Jonathan, my dear sweet beautiful friend. xxx

Yay it worked! PS: Tickles and kisses to the darling furries - Y & Y send kitten licks :) Remind Benjamin we have a play date soon and prepare Duncan to get ready to go fishing again :) xxx

Bless you.

Hey Jono! Just 'waddling' by to say Hi and let you and Beno know that YEAH! it feels GREAT to do so, and let others of God's 'creatures' know that I LOVE and DO CARE about them ... and a whole LOT TOO ... & that I'm confident that we'll all meet in the 'FLESH' one day! You are so gifted, so talented, so special and deliver LOVE beyond any which you could ever even begin to comprehend dear Jono. Your BRILLIANT, yet FEW choice words always speak entire VOLUMES ... copies of which, undoubtedly line the walls of the halls in Nirvana!
Don't forget to read matthewbooks sometime, especially, 'Matthew, Tell Me About Heaven'.
With abundant love, light & blessings,
Annie / Durban / South Africa

Opps! So sorry to give you all this cleaning up to do :( ... was determined, 'til the cows came home, that I'd get my LOVE to you and Beno in person ... SORRY! :( I kept getting an 'ERROR' and the rest is history dear ones!

Hey sunshine...

And yes, you are my sunshine. You sometimes write all gloomy and dark but in the end, I still see the sunshine. Your writing makes me get up every day and take my pills and go through the whole routine. My mom always told me that hugs make things better even if they don't really solve anything. If I could, I would give you such a big hug. Instead, I can only send you this hug via e-mail.

Bubba HUGS!!! Jonathan
Patrick

Great site, good food for thought. I'll order the main dish please :)

Oh Jono, I've just watched David Crowe's brilliant & honest 3 Part videos on You Tube, and want to cry & scream at the same time. I believe that we each have a self-chosen purpose & mission to accomplish in each life ... but why did you have to choose this one? You're a TRUE martyr ... bless you for that, even if it saddens me so. :(
More love and light to you, Beno and the kid, @nnie

You and your fur-kid are in my thoughts as well. Hope you are both feeling better. BTW, has the vet mentioned Lupron for Benjamin?

Love and Light,
KT

Feel free to waddle up and receive attention anytime, sir Jonathan! Benjamin is a sweetie...but so is our Jonathan! I enjoy reading these blog entries so I can get some insight into you more easily than slapping you with questions for answers. :-D

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This page contains a single entry by Jonathan published on July 14, 2007 3:44 AM.

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