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« The Fire Marshall | Main | Twenty Years Ago »

Where I am right now

I have wanted to come here over the last couple or so weeks for so many reasons
This is probably going to be difficult to read, as I have been a bit off lately. I am not able to think about form, substance, etc....as.......... My brain has apparently scrambled, in a moment of time.

As I sit here this evening, I am having to work really hard to stay focused on this task.
I have related the story about my ill fated drug interruption. I will reiterate the salient facts.
I had a singular moment of my disease history, that would allow me the postulated chance of a gamble to stop taking these meds.

I'll be honest with you. I was really hoping to lose some of this truncal weight. I don't have a spare tire,........I have something more befitting a tractor pull event.
If they stood up all pretty-n-all, I'd be positively tickled to have the bra size that I do, but that is not the case here.
Frankly, they make me terribly uncomfortable.

I took my last dose of Viramune, on Nov.30.
I became incredibly ill in the first weekend in Dec. a temp of 103F. Suffice it to say, that I remained ill until the second week of Jan.'06' I called my ID clinic,( Dec 8th) and was reassured that it just had to be the flu.
I really believed that it was a severe viral rebound, but was poo-poohed by the clinic. No appointment was made.
Saw Rachel for my routine visit on Jan. 14, and sternly admonished me for having come off the meds, without the call I was supposed to make to her in consultation, before embarking on the STI.(StructuredTreatmentInterruption)
Long story short, I went off half cocked, and stopped without the knowledge that my numbers had fallen right back to their original. unwavering, CD4 500-600, VL undetectable.
{ I must interject here, that my lab values have consistently been the same, for 4+ years)

On tuesday morning I had a routine visit with Rachel. I was finally able to find out what amount of raping, and pillaging had been done to my system for the six week duration of my "break".
January's lab values were a little worse than I had anticipated......(to say the least)
CD4 dropped to 400, and I had already managed to replicate 72,000 copies of VL./whatever standard expression.

I've been back on my usual meds since the January visit, and will learn of the results on Monday, or Tuesday.(Trizivir/Viramune)
I remember the accident on Jan.4rth, and my visit with Rachel on the 14th, but have only vague remembrances of January, other than Serenity's birthday, and mine on the 12th. I couldn't tell you what I did, or not.
My dining room table is rebundant with official things I should be tending to, but I have had the attention span of a gnat since the first of the year. I have piled them in interesting loose bundles on the table, in order to be able to continually view them at a glance, so I don't miss something I should do.

I have been reading, and "lurking" in the forums over the last few weeks, and have felt absolutely deficient in any capacity to contribute. Even as I have been greatly moved by many threads.
My thoughts have been hurky-jerky, and I could never dare to sound off balance, to some of our newer members, I could see that it might be frightening to some.

I had a whole list of things I wanted to express with this jubilant opportunity that I was granted by our benevolent benefactors Tim,Peter,Andy,Howard,and our beloved Annn.
I am very slowly regaining my cognitive, and theoretical thought processes, so I ask you to bear with me for a period of time.

My brain is not firing on all cylinders of late, but I do have so many things I want to share with you.
Hang with me, It'll come in time.


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This page contains a single entry from the blog posted on March 8, 2006 7:47 PM.

The previous post in this blog was The Fire Marshall.

The next post in this blog is Twenty Years Ago.

Many more can be found on the main index page or by looking through the archives.


 
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