Subscribe to this blog's feedI am not trying to be disrespectful to women, but this is the only way for me to describe what I go through every four to six weeks for about 2 days. So, I have to call it my PMS days.
I just finished going through a bout of two days of migraines, queasy stomach and a bit of a fever. For these days, I eat Advil like candy and eat light with frequent naps during the day. The absolute worst thing about this when it comes, I’ll even wake up with a headache.
My ID doctor finds nothing physical now, but can only guess all of this, is a result of the Progressive Multi-focal Leucoencephalopathy – PML. I guess the JC virus did a number on my brain which causes these episodes. Usually, they are not totally debilitating, so I function during the day sans my exercises. I still read aloud and write every day as long as the headache isn’t bad, even some light household chores and play with the dogs, too. Luckily, this one was a mild one. Maybe once a year, I get it bad where I just stay in bed. THAT I hate!!!
I am the first to say that if this is all I need to deal with, then I will not complain. I feel sad when I think of what other HIV positive people go through with OIs, the medication’s side effects, etc.
I have to keep looking toward my future. What it is going to be, I don’t know, but I am not about to stop from heading forward!
I am finally getting a learner’s driving permit for the hand controls! Once I get it, hopefully within a week, I can start my driving lessons here with a local handicap driving school with a converted mini-van. After, I pass the test during the final lesson, I can get my license back! It has been such a bewildering journey that I began in June 2006 and just now, in October, I have finally strove through all the confusing and contradictory bullshit that all of them have put me though: department of transportation and the rehab center in particular. The driving school explained what I needed to do and that’s what I followed and it made sense and worked. These other supposedly knowledgeable institutions only made me say, “What the f**k?!” Now, I calmly wait – barely. The thought of such freedom this will allow me is almost unexplainable to others who never had to deal with such a limitation.
I also wish to recommend a service that I have been using for six weeks now – WeGoShop.com I have been using them for my grocery shopping and find my local person to be very good and personable. Sure, there is a fee and they’ll even pick up prescriptions! I don’t need them for meds, but they take care of my grocery shopping. Now, my shopping is just that – shopping. I can actually browse now without a list!
Well, I only have a slight headache and do not wish to aggravate it by writing too much.
I would hope to add an additional BLOG very soon and be back on my regular schedule of exercise!