Subscribe to this blog's feedHEY SIMON!!
IN REGARDS TO MY BLOG
I THINK YOU ARE A VERY INCONSIDERATE AND UNKNOWLEDGEABLE PERSON, HAVE YOU READ MY ENTIRE BLOG?
My life is affected by HIV and feel I have had A LOT to deal with for the past 7 – going on 8 – years and am deeply hurt by your comment.
Can you say – PROGESSIVE MULTIFOCAL LEUCOENCEPHALOPATHY?? Look it up. It has to be one of the worst results of AIDS/ HIV and now they have finally accepted its debilitating affects in cancer, MS and other diseases which end up destroying the immune system.
I drove for the last time the last week of October 1999 just before being diagnosed with the PML and was then told I would be lucky to live 6 months as every single part of my life was taken away. I lost my ability to walk, write, talk and even feed myself and when I survived past the 6 months, then I was told my life is gone as I knew it – my job, my car, my every day life. It took me more than a year to get motivated.
So I have had speech, water, physical and occupational therapies over the years and for the past 2 years have developed my very own daily routines of exercises and therapies – handwriting, reading aloud, riding a stationary bike, Pilates and calisthenics, parallel bars, etc, etc.
I remember being told 5 years ago that I would never ever drive – SO THIS IS A BIG DEAL FOR ME.
So before you further berate me – read my entire BLOG and look up PML (Progressive Multifocal Leucoencephalopathy) so you are informed.
HIV is part of my life, not my be all and end all – I refuse.
How dare you minimalise my life!!!