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I Need Your Help

The SERO Project--the non-profit organization I've started to combat HIV-related stigma, discrimination and criminalization--has undertaken a survey of people with or affected by HIV toward criminalization of HIV non-disclosure, potential exposure or transmission. 

The principal investigator is Laurel Sprague, at Eastern Michigan University.  Laurel is a woman with HIV who is also the North American regional coordinator of the Global Network of People Living With HIV (GNP+).  She's also a great advocate, a good friend and has put a tremendous amount of work into creating this survey. 

It is important that we get a large enough response to have statistically meaningful numbers of key populations who are so often unheard, like women, transpersons, people who use drugs, migrants, sex workers and those engaged in survival sex, as well as everyone else, both those with HIV and those without.

Can you take a few minutes to complete the survey?  We hope to release preliminary results at the Int'l AIDS Conference in Washington next month.  The results will be posted at, or you can sign up for the SERO Project's e-newsletter and we'll send them to you.

This is a chance for all of our voices to be heard and an important opportunity to shape advocacy strategies and policy.  Please, before you go back to your Facebook page or email or whatever else you are doing, take a moment right now and complete this survey

Many policy leaders and advocates are starting to understand the importance of addressing HIV criminalization; it is vital that the voices and opinions of those of us with HIV, our friends, families and co-workers are heard. 

Thank you.

Sean on:


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Comments on Sean Strub's blog entry "I Need Your Help"

What about those of us who are not at this time personally affected by/with HIV, but who care very much about those who are? Should we also take your survey, or would that muddy it up?

It would have been helpful if they'd pointed out that this survey is only for people in the US. It didn't mention it anywhere until I'd got most of the way through. If they DO want people from outside the US to answer it, they need to change the wording of some of the questions.


The scope of the research project was the U.S., but when we started disseminating the survey we had a lot of interest from people outside the U.S. (and, of course, the list serves we use to promote it don't go just to people in the U.S.) So we added a "country" option next to the listing of the U.S. states.

Next time we'll make it clearer. Thanks for pointing this out.


Sean, what about Barbara Kelly's question? Should I urge all my friends, mostly seronegative and liberal, but with conflicted or confused opinions on this topic, to take the survey? Or is the sample population being "tested" as it were, for responses, construed, for the purposes of the survey, more narrowly than that?


Hi Jay and Barbara, sorry for the delay in responding. Anyone can take the survey. We do ask if they are positive, so we'll be able to break out responses by those positive and those negative, don't know or choose not to answer that question.

The survey was originally written for an American audience and asks what state someone is from, but there also is an option to identify what country someone is from. We may end up doing another survey written for a global audience (the issues differ from country to country, region to region), but we're starting out with the U.S. issues.

We are really looking for people with conflicted and confused opinions on the issue, so please encourage all to take it. Thanks.

I started to answer the survey (on two different occasions) but found many of the questions woefully assumptive and not very clear, so I could not answer them in a way I felt truly reflected an honest response. I feel that this is an important issue and should be addressed, but I don't think I can complete the survey in its current wording/phrasing.

Glen, if you like, please send me comments you have on the survey instrument (to sean.strub --at-- as we may revise it and do further research at a later date. We are exploring some complicated concepts in it and trying to find the best way to phrase questions in order to get meaningful responses is an ongoing process.

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This page contains a single entry by Sean Strub published on June 20, 2012 3:53 PM.

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