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Closer to a Cure

| 2 Comments
For the last sixteen years (since my children's diagnosis) all of my most 
important choices have revolved around this one, larger than life question,
"Will this bring us closer to a cure?"


Asking myself that question has brought me clarity in many a tough situation.

I think as caretakers, we're tried and tested on a daily basis on how to best 
look after our families. If I were to have my way, our biggest concern would be getting our oldest to do his homework, but our reality is that for most of my children's lives medical care has had to take a front seat. 

My children are seen regularly at a cutting edge research 
hospital, and being a patient there means that you agree to take part in
studies that the hospital is conducting.

When asked if we will take part in a particular study, my "clarity" question 
comes in handy. It helps me to focus on what's most important for my children. 
If I feel that the study is too invasive or just not right for my children, naturally, 
I decline. If we all decide that a certain study they ask the children to participate 
in could benefit, or even possibly bring us closer to a cure, then we jump on 
board.

My children have beaten some incredible odds and I thank God every single 
day. Do I believe that one day my children will be cured of HIV? I do.

During our last check-up, we were talking with one of the workers. The kids 
were enrolled in a "survey" study in which they had to answer questions 
regarding their general knowledge of HIV. One of the questions they were 
asked was, "Do we have a cure?"

I smiled when my son answered, "Yes, of course. We just need to find it."

His words just may have been prophetic. Read this amazing story and you'll understand what I mean.
Once thought to be an impossible feat, doctors at the University of 
Minnesota are attempting to cure a six-year-old little boy of both his HIV 
and cancer. He underwent a very difficult transplant (the first of its kind) 
just yesterday, and now will be in isolation for the next 100 days while 
he recovers.

I don't usually ask my blog followers for favors, but because I believe so 
strongly in the power of prayer, I'll ask that you pray for this child, his 
family, and the doctors who are attempting to cure him of both his HIV 
and cancer. This "first of its kind" transplant could lead us toward what 
my family already believes possible...a cure for HIV.


Suzan on:

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Comments on Suzan Stirling-Meredith's blog entry "Closer to a Cure"

I pray for a cure for this disease
I think procedures like mentioned above will provide a cure and we need to try things and take risks

However I think this idea with cord blood was tried before in europe (where I am from)
With a patient in Holland

http://www.foxnews.com/health/2012/06/07/doctors-turn-to-cord-blood-transplants-in-hopes-curing-patients-with-hiv/

There was meant to be word at Christmas but so far I havent heard anything

However I do wish him and your son all the best

Like myself, my doctor also believes "someday" there will be a cure. But, my concern at what price ?
At the moment the meds are incredibly expensive....My daily pill costs $1,700 per month, luckily(?) I have insurance from my employer and my monthy payment is over $300 !

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This page contains a single entry by Suzan Stirling-Meredith published on April 24, 2013 2:20 PM.

12-1-12 World AIDS Day was the previous entry in this blog.

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