For the last sixteen years (since my children's diagnosis) all of my most
important choices have revolved around this one, larger than life question,"Will this bring us closer to a cure?"
Asking myself that question has brought me clarity in many a tough situation.
I think as caretakers, we're tried and tested on a daily basis on how to best
look after our families. If I were to have my way, our biggest concern would be getting our oldest to do his homework, but our reality is that for most of my children's lives medical care has had to take a front seat.
My children are seen regularly at a cutting edge research
hospital, and being a patient there means that you agree to take part in
studies that the hospital is conducting.
When asked if we will take part in a particular study, my "clarity" question
comes in handy. It helps me to focus on what's most important for my children.
If I feel that the study is too invasive or just not right for my children, naturally,
I decline. If we all decide that a certain study they ask the children to participate
in could benefit, or even possibly bring us closer to a cure, then we jump on
My children have beaten some incredible odds and I thank God every single
day. Do I believe that one day my children will be cured of HIV? I do.
During our last check-up, we were talking with one of the workers. The kids
were enrolled in a "survey" study in which they had to answer questions regarding their general knowledge of HIV. One of the questions they were
asked was, "Do we have a cure?"
I smiled when my son answered, "Yes, of course. We just need to find it."
His words just may have been prophetic. Read this amazing story and you'll understand what I mean.
Once thought to be an impossible feat, doctors at the University of
Minnesota are attempting to cure a six-year-old little boy of both his HIV
and cancer. He underwent a very difficult transplant (the first of its kind)
just yesterday, and now will be in isolation for the next 100 days while
I don't usually ask my blog followers for favors, but because I believe so
strongly in the power of prayer, I'll ask that you pray for this child, his
family, and the doctors who are attempting to cure him of both his HIV
and cancer. This "first of its kind" transplant could lead us toward what
my family already believes possible...a cure for HIV.