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Our Untold Stories

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On March 10th Visual AIDS hosted a public discussion entitled TIME IS NOT A LINE in which thoughts, feelings and ideas about the ongoing AIDS crisis were shared across generations in small and large groups, and through presentations. Hanging out afterwards, eating what was left of the snacks, Visual AIDS program manager Ted Kerr had a chance to speak with activist and writer Ron Goldberg who had been in attendance. Goldberg shared that he was working on a memoir about his early AIDS activism, explaining that putting history down on paper to share was important to him because of his own search for a past. Goldberg shares his experience in the essay that follows.

For many ACT UP veterans and AIDS Generation survivors, 2012 was the year our lives became "History." Long-hidden home movies - shaky videos of us marching on City Hall and storming the NIH, so young and passionate, laughing, screaming, waving innocently at the camera and angrily keening over the bodies of our dead friends - were being projected onto movie screens, and our actions of 25 years ago cited on TV, in newspapers, and on the web as a benchmark for effective activism.

It was something of a shock.

It's not that we doubted the importance of what we had done - we knew, even then, that we were changing the world - but I don't think we ever thought that anyone would care. After all, so few seemed to care about AIDS in the first place. But now that it appears they do, we have to begin to think about the history that we're sharing.

For me, this is not an idle question. For the past four years, I've been working on my own retelling of our history, a memoir of my life with ACT UP titled, "Boy With the Bullhorn" - I was, among other things ACT UP's unofficial Chant Queen - and I constantly worry if I'm up to the task of telling this dense and complex story. I worry, like Ouisa in John Guare's "Six Degrees of Separation," about turning real and profound experiences into anecdotes, and simplifying complicated events and personalities into stock figures playing out their roles in some neat and tidy narrative. I worry about presenting a nostalgic, rose-colored version of ACT UP--one that glorifies it as a golden age of community activism, but without capturing the anger, confusion, love, terror, humor, and despair that made it run.

But even if I manage to retain some control over how I tell my story, I still worry about how it will be heard. I know how hungry we can be, particularly young queer people, to discover our history. We long to find heroes to look up to and to see our lives reflected in a film or photograph, or in the pages of a book or web site.

I remember how excited I was when I started to uncover my own queer heroes. A bunch of us in ACT UP had formed a study group to search out our queer activist history in celebration of the upcoming Twentieth Anniversary of Stonewall. Most of us knew the basic outline of the story and how the riots gave birth to Gay Liberation and the gay rights movement, but we didn't understand it in any great depth. After all, it wasn't something that was taught in school or passed down by families around the kitchen table.

But then again, it wasn't being talked about in our community either. When I went looking for books on our history, I came away from the Oscar Wilde and Different Light Bookshops practically empty-handed. Oh, they had plenty of self-help and coming out books, stacks of lesbian and gay fiction and erotica, and shelves of AIDS and health-related materials, but only a small handful of books on gay history and politics, most notably John D'Emilio's essential "Sexual Politics, Sexual Communities," which introduced me to Harry Hay, Barbara Gittings, Frank Kameny, and other hidden heroes of the pre-liberation age. The one volume I found on Gay Liberation, Toby Marotta's "The Politics of Homosexuality," was buried at the bottom of the discount bin.

Fortunately, I was headed to San Francisco for a week's vacation and, while there, I stumbled into an old used bookstore in the Castro where I discovered a treasure-trove of out-of-print books on Gay Liberation and the early gay rights movement. I felt like a miner who had hit the mother lode. I raced up and down the aisles grabbing as many books as I could carry--Donn Teal's "The Gay Militants;" "Sappho Was a Right-On Women," by Sidney Abbott and Barbara Love; Arthur Bell's dishy "Dancing the Gay Lib Blues;" and the remarkable "Out of the Closets: Voices of Gay Liberation" anthologies edited by Karla Jay and Allen Young. I spent hours flipping through the pages, wide-eyed and amazed at the bravery, wit, and daring of my queer predecessors, and seeing my own activist life reflected back at me through their experiences.

It took me a while, but then it suddenly hit me--why all these books were here.

This wasn't a bookstore. It was a cemetery.

Who were the men whose names were inscribed on the inside covers and title pages of these books, and what were their stories? What had brought them to San Francisco? What was it like here before the epidemic, during those halcyon "Tales of the City" days? Where were they when they heard that Harvey Milk was shot? Did they light candles and join the march to City Hall that night, and did they riot six months later when Dan White was sentenced? Who was the first in their circle to get sick? Were they caretakers or activists--or perhaps both? Did they set up tents with the ARC/AIDS vigil or volunteer with The Shanti Project? Did they sew Quilt panels or join ACT UP and block the Golden Gate Bridge? What remained of their lives, their friends, and the community they knew, and who would be able to tell their stories? 

This cruel juxtaposition is at the heart of our history, and I think about it whenever I write or talk to young people about ACT UP.

While I am, of course, happy to share our story of empowerment and queers fighting back, and hope you are inspired and see your own lives reflected in the tale, you must also understand that a crucial part - no, the crucial part - of this history is what (or who) is missing and the stories that cannot be told.

For despite all the footage and photos, the history of ACT UP is in many ways a ghost story, filled with lost friends, lovers, and comrades whose very absence has a palpable physical presence. And it is our responsibility - mine as a survivor and recorder of this history, and yours as heirs to our legacy - to not only celebrate what we accomplished, but to grapple with how much and how many we have lost.

And to remember, always, why it is they are gone. 

© Ron Goldberg 2013

Ron Goldberg is a writer and activist. As a leading member of the ACT UP (AIDS Coalition to Unleash Power) from 1987-94, Ron organized many of the group's most famous demonstrations, participated in countless zaps and actions, and served as ACT UP's unofficial "Chant Queen." He has spoken at high schools and colleges about ACT UP and the lessons of AIDS Activism, and his articles have appeared in Poz, OutWeek, and the literary journal Central Park.Ron is currently writing a memoir, "Boy With the Bullhorn," about ACT UP and his coming of age as a gay man, citizen, and activist on the front lines of the AIDS crisis.  www.boywiththebullhorn.com

Life Chances: HIV Criminalization and Trans Politics

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According to the CDC, "in 2007 (the most recent year for which this information is available), the rate of confirmed AIDS cases among state and federal prisoners was about 2.4 times the rate in the general US population," and "at year-end 2008, an estimated 5,733 inmates in state and federal prisons had confirmed AIDS."


In a report released late last year in The Lancet, it was found "transgender women have almost 50 times the odds of HIV infection" than the general population.


When considering these things together, it is ridiculous how seldom when speaking about AIDS, we talk about prison or include trans politics. Even during this time when organizations approach HIV as both a health concern and an ongoing social justice crisis, we fail to make these vital connections. This lack of conversation is preventing us from taking life saving action.


To help facilitate these conversations, Visual AIDS has teamed up with QUEEROCRACY, the Sylvia Rivera Law Project, and the Sex Worker Outreach Project New York to present Life Chances: HIV Criminalization and Trans Politics on Wednesday April 24th at the Leslie Lohman Art Museum.  Moderated by Laverne Cox, the discussion includes Dean Spade. Sean Strub, Che Gossett and Mitchyll Mora.


As part of the conversation, the panelists will explore what is meant by HIV Criminalization, and Trans Politics; discuss what the everyday implications of these things; and consider how we can work within a prison abolitionist framework to overcome transphobia and AIDSphobia that reduces life chances for so many Americans.


Providing an image to help bridge these conversations is the artwork of Kenny O, a person in prison whose work is featured on the event poster. In the letter above he discusses how he is happy to be part of the event, and provides a glimpse into his world.


It is our hope that Life Chances will have positive real world implications, improving the life chances for Kenny, and everyone else.

Before there were memes, there was LOVE, AIDS, RIOT

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Visual AIDS Program Manager, Ted Kerr, considers Photoshop Activism in the age of Social Media, and Ongoing AIDS

Before Human Rights Campaign, memes, or Facebook there was LOVE, a 1966 silk screen by artist Robert Indiana. He created it based on poems he wrote in 1958 in which he stacked the LO on top of the VE. The image was commissioned by the MOMA for a 1964 Christmas card, spawning hundreds of imitators. In the late 1960s Indiana tried to copyright his work, but a federal court ruled that one person could not own a single word.

In 1987, General Idea, a collective comprised of artists AA Bronson, Felix Partz (1945-1994), and Jorge Zontal (1944 -1994) remixed LOVE to make AIDS visible to the world. With Partz and Zontal both living with HIV, General Idea worked to make ubiquitous for the world that which surrounded them: AIDS, stacking the AI over the DS. What started off as a small square painting for a benefit soon was a global broadcasting phenomenon called Imagevirus. AIDS-as-logo was on billboards in Germany, subway ads in New York, and a sculpture that still tours, where people are encouraged to graffiti, leave their mark.

"An image is a stop the mind makes between uncertainties," wrote Djuna Barnes.Artist and writer Gregg Bordowtiz, uses the Barnes quote to explore Imagevirus in his work about the project. He writes, "What General Idea truly did with AIDS was to take hold of its form as a word-image and subject the acronym itself to the most powerful microscopic scrutiny possible in the field of art." 

And scrutinize, the art world did. Around the same time that Imagevirus launched, Gran Fury, a collective of artists including Mark Simpson (d.1994), Tom Kalin, Loring McAlpin, Avram Finkelstein, Terry Riley, Michael Nesline, Donald Moffett, Marlene McCarthy, John Lindell, and Robert Vazquez-Pacheco, were also making art in response to AIDS. Often described as the artistic wing of the seminal AIDS activist group ACT UP, Gran Fury's work was visceral, and raw. Like Imagevirus, the work Gran Fury did was rooted in repetition, and being part of the urban fabric. Posters like "Art is not Enough" spoke both to the need for the art world to be part of the AIDS movement, and of awareness that art has its limits. It was with this in mind that Gran Fury scrutinized General Idea's scrutiny. They thought Imagevirus did not go far enough, where was their anger? Gran Fury countered AIDS with RIOT, using the the stacked letters not only to engage General Idea in an arts based conversation about the role of images, but also to also conjure up the spirit of Stonewall, a riot that for many, set off the gay rights movement two decades earlier.

AIDS versus RIOT very much sums up the conversations being had in the art world during the end of the 80's, the headiest days of the early epidemic. Many artists living with HIV and impacted by AIDS, such as painter Frank Moore (1953-2002), continued to make work that was not immediately understood as political. Where as groups like Little Elvis, fierce pussy, and Gran Fury consciously created work grounded in agitprop. They were frustrated about the lack of work that was being done around AIDS and they expressed it. The work was part of their activism, and part of their self-care. As Tom Kalin said last year at a teach in with the Art and Labor wing of Occupy, the work Gran Fury made was as much for fellow activists--to lift their spirits--as it was for the general public.

What is important to remember is that while AIDS and RIOT created and debated, these artists and activists were not only watching their friends and loved ones die of government neglect, many of them were also dying. There was urgency in the streets that made these conversations not theoretical, but materially important. Flesh was on the line.

Fast-forward a generation or so later, and a tactically similar conversation as was had between Gran Fury and General Idea was playing out across social media yesterday. This time not in paint and printmaking, but in Photoshop and profile pictures.

In response to the Marriage Equality case before the US Supreme Court, web meme guru George Takei posted the photoshopped Human Rights Campaign (HRC) logo that was now red and pink, rather than it's normal blue and yellow. According to the Chicago Tribune; within hours it had been shared over 20,000 times, soon popping up as people's new profile pictures, and avatars on twitter. * 

By midday, feigning disinterest, offering a queer critique of the HRC and the equality model, or using the meme to raise awareness of other issues, many around the web took to Photoshop to create their own "equality" logo. There was Tilda Swinton sleeping on the equals sign; Against Equality's clever use of the "greater than" (>) sign; Divine shooting from the center of a red square; and poppers titled to the side, making the equals sign.

Visual AIDS got into the act by photoshopping red and pink both General Idea's AIDS and Gran Fury's RIOT, not only to bring it full circle back to LOVE, but more importantly because you cannot talk about equality in America without discussing HIV/AIDS. We wanted--to borrow from Bordowitz, who borrowed from Barnes--to use the meme to "stop the mind" of the various publics invested in pro/anti gay marriage conversations to highlight pressing uncertainties in American life, specifically HIV/AIDS.

While AIDS may not be understood as the death sentence it once was, we are still in crisis. While we as a movement try to embrace the advancements made in terms of prevention (PrEP, PEP and microbicides) and medical care, bodies are still in danger. Activists now are focusing on HIV criminalization; the needs of long term survivors and the newly infected; the injustice around access to care; and why not enough is being done around poverty, housing, education, transphobia, immigration reform, misogyny, racism and other social determinants of health we know lower HIV rates and improve life chances for those most at risk of HIV, due to systemic discrimination.

In the face of all this, Photoshop activism may seem like a silly thing, creating an image, being part of a picture-based conversation. But one of the numerous lessons we can gleam from ongoing AIDS activism, is that expression matters. It is not the be all and end all, but art helps interrupt a conversation, create new ways of thinking, provides a way to heal while acting up, and broadcasts dissent when words are not enough.

In a 1993 speech about the role of art in social movements, Robert Atkins, one of the founders of Visual AIDS, said, "Effective, socially-engaged art practices can help save lives. But only if large and vocal elements within the arts communities help ensure their broadest possible reach."

Like General Idea and Gran Fury before them, the hundreds of people yesterday that took to their computer to riff off the "equality" logo were engaging in their own scrutiny of this moment, of what is meant by equality and of how lives are really lived in the US. They were attempting to be part of the broadest possible reach. And the work continues. Flesh is still on the line. 

* Correction: George Takei did not create the red and pink logo. It was created by the HRC. 

So Many Ways to Make Love!

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Ted Kerr from Visual AIDS shares Valentines Day plans!

 

How do you make love?

How do you love yourself?

How do you love other bodies?

These are questions that Nelson Santos, Esther McGowan and I (Ted) at Visual AIDS think about all the time. We think about them in terms of art, HIV/AIDS, sex, our own bodies, and activism. Love is important. Love is vital. Love is confusing. And we can't love alone. So we work with others. We ask others. We listen to others. We love others.  PLAY SMART, our safer sex series came out of a conversation around sex parties. What do guys need at sex parties that will provide them condom, lube and info? Our answer: sexy playing cards with "stats'" on the back. The stats are like tips on how to make the most out of sex: love your body, love everybody, love every body. And it includes information on PREP and PEP. 


For Valentines week we want to share ourselves, some of the thinking behind PLAY SMART and the work of people that inspire us. Sharing is one way to love.

 

On Tuesday, February 12th, we are presenting POSITIVE ASSERTIONS with AMOS MAC, DEVIN ELIJAH, IVAN MONFORTE, JESSICA WHITBREAD and SACHA YANOW. We hope to inspire you to love and express yourself even more. The 5 amazing artists will share their thoughts and images of their work to explore how they use art, community and love to express what it is to live with HIV, be a person of color, be trans.

 

Then on Thursday Visual AIDS is teaming up with AIDS ACTION NOW out of Toronto and Rebel Cupcake to co-host a NO PANTS NO PROBLEM Dance party.

 

On Friday, as we are feeling more connected from the night before, we are part of a reading from women living with HIV.

 

In the end, part of what love is to Visual AIDS is community.  We need it. We love it. We hope to see you next week.  Email me if you have any questions.

 

Ted Kerr

Programs Manager

Visual AIDS

tkerr@visualaids.org

We Are Not Alone: AIDS and our response

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Screenshot from ICA Day With(out) Art web page


AIDS can be isolating, and yet we have a rich history of people coming together to care, to demand change, to heal, and to create. As the Programs Manager at Visual AIDS I get to see it first hand when I think about our history, and get to work with artists, activists and advocates to help shape the future.

 

Visual AIDS was founded in 1988 when a small group of writers, art historians, and people from the art world banded together to ensure art institutions were part of the response to HIV/AIDS. Day Without Art was born.  In the first year over 800 organizations either closed their doors or covered up an artwork on December 1st to illustrate the loss of life within the art world due to HIV. Employees were encouraged to volunteer their time on December 1st with people living with HIV.

 

Nearly a decade later, after the introduction of ART (Antiretroviral Treatment) helped many live longer lives with HIV, the name changed to Day With(out) Art. Instead of closing doors, and covering up art work, art organizations were encouraged to work with artists living with HIV to create new work and programming to raise awareness around HIV, and show the vibrant lives that some artists living with HIV could have.  As the reality of some people living with HIV changed, so to did the response.

 

Now, as public awareness of HIV has entered into a third decade, Day With(out) Art has become a way in which we can look both backwards, forwards, and what is happening currently. For Day With(out) Art 2012, Visual AIDS was proud to distribute United in Anger: A History of ACT UP by filmmaker Jim Hubbard.  We helped screen it at over 30 locations around the world. As part of the screening, public conversations about the ongoing epidemic occurred. And in some cases a whole day of programming was created.

 

A wonderful example of what can happen on Day With(out) Art came from the Institute of Contemporary Art in Philadelphia where Visual AIDS' former Executive Director Amy Sadao is now the Daniel Dietrich II Director of the ICA. They screened United in Anger and Che Gossett's  KIYOSHI KUROMIYA: A Queer Left and AIDS Activist Inspiration, hosted a ribbon bee, and had a roundtable discussion with artists Joy Episalla and Carrie Yamaoka.

 

To keep the conversation going after December 1, they created a user generated tumblr that catalogs red ribbon imagery, and a web page from which you can download a zine of AIDS related readings, and watch a video they produced from their day of programming.

 

The work of ICA and the many partners that Visual AIDS had the opportunity to work with on December 1st, show us is that there is a vital community of people committed to ending the harm of the epidemic.  AIDS is not over. And while it is a damn shame that suffering continues, our hearts are buoyed by the ongoing commitment of people living with HIV, activists and artists. Together we heal.

 

-       Ted Kerr, Programs Manager

Visual AIDS

Postcards Get Me Closer

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A postcard from POSTCARDS FROM THE EDGE 2013


Postcards Get Me Closer

- Ted Kerr, Visual AIDS Program Manager


Long before I got to Visual AIDS I made postcards for the annual Postcard from the Edge event. I remember sending it from my home in Edmonton AB Canada and thinking about it being on the wall next to work by Yoko Ono, Kara Walker, aa Bronson and many others. I was giddy thinking about how my art was rubbing shoulders with the greats, and how though donating an artwork I was helping an organization I believed in. It made me feel connected to a history and a world I wanted to be in.  

 

Fast forward a few years later I am part of a group of volunteers, staff and interns burning the candle at both ends to ensure our 15th annual PFTE goes off without a hitch. The office is full of postcards, exhibition hanging tools, and party supplies. How exciting. Now the community that felt so far away is part of my everyday experience. Together we are raising money to support artists living with HIV, and the work of using art to remind the world that AIDS is not over.

 

Back when I was in Edmonton I remember how I would pour over the photos of the event once they were put online. I would look to see if I could spot my postcards, and scan the crowd to see if I recognized anyone. Now, my favorite part of the event is walking around and thinking about how over 1400 people made time to create a work and think about HIV. I know it is not enough to end the epidemic. But it gives me hope.


- Ted Kerr, programs manager

 

Click here for more information on Postcards from The Edge.

Get a preview of some of the works on our Postcards from the Edge Tumblr.



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