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Life's Lesson With HIV

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As I enter my 28th year of living with HIV I have to say that I have learned some valuable lessons along the way, some good and some bad but all my experiences have happened for a reason. The thing is that while you're in it you don't know that. It's not until you get from out the storm not only do you discover why you went through it but you recognize your strength for all you endured. I'm thankful I didn't come away bitter and accept all the new traits now part of my building blocks. So as the New Year's arrives and we start a new chapter I reflect on my experiences and share the 20 lessons I've learned about living with HIV.

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1) I've learned that you're either living or you're dying and despite what you heard about HIV it's not a death sentence. Yet there was a time when I simply stopped living and settled on existing. I had to recognize we all are going to die, that's a fact but until that day how will I live with the life given to me. You're either like the zombies in the TV show, The Walking Dead, walking in an aimless direction or you're taking each day as a gift and cherishing it

2) I've learned the people who have rejected me because of this disease have missed out on having the privilege of knowing such a strong individual. They must be scared of that strength and their decision is something they have to own as I embrace everything about me. And in those lessons I've learned that anyone who has rejected me has simply left room open to be filled by someone who will accept me for me

3) I am beautiful. As simple as that.

4) I've stopped asking 'Why me" and started to understand "Why me' as I have helped others to live with this disease by breaking the silence and talking about HIV. I didn't know at the time I was someone else's gift as through the years people have been made to feel less alone as they listened to shared experiences.

5) My doctor is my friend and if he's not then he has to go. Just because he/she wears the white coat and has the degree we're in this together. At one point I thought I had to submit to everything he prescribed or said but learned that my voice is just as strong as his. So if it's working, then keep it strong but if it's a one sided relationship then he/she has to go.

6) When I used to complain about taking medications a nurse gave me great sound advice. I was hoping for sympathy but she served me a spoonful of hard love as without blinking she told me, "If you have something that's saving your life and its working stop complaining and take the damn pills." Lesson still appreciated today.

7) Start dreaming again.

8) If you're worried about anything killing you just try being best friends with your anger. Having this disease I have had many opportunities to be angry but after walking that walk I learned quickly it wasn't getting me nowhere. Anger strips you down from the inside and clouds your dreams. I accepted that upon hearing my status I had the right to be anger but for me to be well I had to not let my anger guide me.

9) I've learned its okay to cry but to not let those tears create an ocean that I can drown me. Along with anger, tears will come but at a point I had to wipe them away and start heading back to shore.

10) Give myself a hug everyday

11) Sex is still good

12) Stigma is a two way street and don't assume everyone will reject you because of your status. Yes stigma is real and people do inflict it on those who are positive but sometimes I have to recognize when I'm handing out my own dose of stigma. In this lesson I had to learn that not everyone who is negative is ignorant about this disease. This was a good lesson for me to learn as it helped with disclosing and most importantly it helped me in relationships whether friendly or intimate.  

13) I'm more than HIV. It seemed that with the doctors, the pills and condoms shoved in my face HIV was all I would ever be. But in thinking that I wasn't allowing myself to see the fullness of who I am. I may write and speak about HIV but the one thing I tell myself is not to limit life to a three letter word.

14) I've accepted where people are in their HIV treatment and what works for me won't necessarily work for someone else. When handing out advice I have to check myself and accept that my treatment was designed for me and people react to things in a different way. So whether it's advice, the way I keep track of taking my medication or anything related to my HIV, it's mine and may not work for others. So I keep my judgments to myself.

15) I've learned as I approach my 28th year of living with HIV that it's not a competition when others share their length of time. The one secret of those living with HIV is sometimes we play a one-man-up game where we trump others with how long we've been positive. We show our battles scars as if having HIV is a competition. It's done in a non-malicious way but if anyone wins we all do for being able to proudly state how long we've been living with this disease is the true prize.

16) I learned that whether it's my cd4 count, my weight or viral load- to heed the numbers but not let the numbers dictate my state of mind. Not saying the numbers are not important but developing anxiety around your numbers is not good. I learned to celebrate the good numbers and don't stress if they will fall. Just keep doing what I'm doing. And if they're dropping then I have to look at stopping what I'm doing that's probably causing the numbers to drop

17) I'm not being punished by God or enduring any other revenge.

18) I can still cross oceans

19) Drinking chocolate milk helps the pills go down easy

20) I've learned to be open and accept anything good or bad that comes my way. And as I step forward even if there is no cure I know that my life will be the best one I can make. So I welcome my next milestone and embrace this journey we call life!

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Comments on Aundaray Guess's blog entry "Life's Lesson With HIV"

You just gave me an idea for my book. I will take the 28 reasons I have survived HIV, and now expand upon them. this could lead to 28 very interesting short stories. Book due out in Dec. of 2014 VIVID RECALL. I hope you read my story in POZ a few months ago. 28 year, grateful years gives us a lot to reflect on. Thanks stay healthy. Bill.

PS. Have you ever gone to the POZ retreat in PA??? Your name and face are familiar.

Thanks doe your 20 list. While I've only been diagnosed for 4 years now, I feel in some ways it has been a lot longer. Maybe because I did not get angry and want to blame others for the situation. I had always played safe, but somewhat along the line something went wrong. I was infected, how or when I'm not sure, but I don't dwell on it.
I know my spirituality did help me a lot. It took me a few months to fully understand that God was proving to me that I was a strong person. That he knew I had what it took to be there for those who did not have the solid emotional personal background to handle this news. He let me show others that you are the same person you have always been. There is nothing that has change with me. I am still that caring friend that I always was and will always be.

Thanks, Allen

Thanks for your wonderful words and insights. I will use them in my talks and counseling with my patients. Good luck in the future and keep on drinking the chocolate milk!!

Nice 20 lessons, I try to do the same, thanks God i'm living my life. I recogniza I still have some issues on rejection, but i'll start to work on it.

Thank you.

I am 65 years old and found out in 2007 that I was HIV positive. I was on track to adopt my grandchildren when the adoption caseworker found out and they took my grandchildren. The United States Department of Justice took my case and filed a law suit against the state of GA. I want to find a way to get my story out so that this wont happen to another HIV person. You can live with HIV if you take care of yourself. It is not a death sentence.

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This page contains a single entry by Aundaray Guess published on January 21, 2014 5:02 PM.

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