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It's Back! Meth Use By NYC Gay Men Rising Again

| 2 Comments
Gay Men and Meth in NYC SF LA

Bad news, guys. The percentage of gay men using meth is rising again, especially in New York City. There's only one study that has consistently surveyed gay men about their meth use over time -- the CDC's National HIV Behavioral Surveillance (NHBS) study that surveys gay and bisexual men every three to four years in twenty U.S. cities with high HIV prevalence. 

In 2010, I reached out to the principal investigators in three of those cities -- New York, San Francisco, and Los Angeles -- to see if meth use had dropped since the burst of anti-meth activism launched by the gay community in 2004. I reported the dramatic drops that occurred between 2004 and 2008, and fortunately, that good news was confirmed by the 2011 survey as well. 

But since then, there have been many anecdotal reports of rising meth use in New York City, especially among younger gay men. So last week, I asked the health departments in all three cities to provide their 2014 results, and they confirm the anecdotal reports. 

Meth use by gay men in the New York City has more than doubled in just three years.

It's back to the drawing board, folks. New York State can kiss its Ending the AIDS Epidemic goals goodbye if it doesn't include meth prevention targeting a new generation of gay men who never witnessed the community's response launched in 2004 (with a big assist from annual city appropriations for meth prevention campaigns from 2004 to 2008).

Fortunately, ACT UP New York recently launched a Crystal Meth Working Group to bring renewed pressure to bear on this issue. Step one -- bring NYC's Health Commissioner Mary Bassett up to speed (pun intended).

Charlie Sheen Shits On 30 Years of AIDS Activism

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Charlie Sheen

I take back everything I said about Sheen and his disclosure. When you become a public advocate for a disease you share with millions of other people, it comes with a hefty dose of responsibility. Sheen's first steps with this responsibility? He launches a "chase the cure" effort with The Dr. Oz Show (presumably with a nice ongoing paycheck), goes off his meds without telling anyone, goes to Mexico to seek a miracle cure from a scam artist even Dr. Oz hasn't heard of -- a "Dr." Sam Chachoua (he's unlicensed in the U.S.) -- who is so convinced he's cured Sheen that he supposedly injects himself with Sheen's blood (according to Sheen, who probably thinks magicians actually saw women in half).

To his credit, Dr. Oz chastises Sheen's first cure attempt, and convinces him to go back on treatment. He also brings on the show the only HIV expert I've seen in the same room with Sheen thus far (Sheen's own doctor is NOT an HIV specialist) -- Dr. Michelle Cespedes, and infectious disease specialist from Mt. Sinai -- who explains why Sheen's rebounding viral load is so dangerous (and offers a great primer on the destructiveness of inflammation). 

As I watched this craziness play out, my compassion for this man vanished. He will surely convince others to seek out "Dr." Chachoua in Mexico, and some of those folks might end up dead. 

Charlie -- please leave the search for a cure to the selfless advocates that actually care about this goal. Crawl back into your "babe cave," write a big check to amfAR, and call it a day. Real AIDS advocates are the reason you're still alive, so stop shitting on our legacy and continued work.

The PrEP Dinner

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l to r James Krellenstein, Peter Staley, Jim Eigo, Larry Kramer and Matt Ebert
l to r. James Krellenstein, Peter Staley, Jim Eigo, Larry Kramer and Matt Ebert

A little AIDS history was made Monday night -- a uniting of science and anger to get our juices flowing again for the fight ahead. It felt like old times, with voices raised, gossip shared, wine poured, and love filling the room. We even wrote a statement! For the record, James's delicious home-cooked meal: butternut squash soup, boeuf bourguignon, mujadara, homemade bread, and chocolate mousse with rasberries and cream. Here's the statement. PLEASE SHARE WIDELY!

The PrEP Dinner
December 7, 2015

We - AIDS activists, new and old, aged 24 to 80 - have just broken bread in the same apartment where GMHC was formed, coming together for a lively discussion on how to reduce HIV infections among gay men and trans women. Although we may not see eye-to-eye on every issue we debated tonight, we all agree that Pre-Exposure Prophylaxis (PrEP) is highly effective at protecting a person from HIV infection. While PrEP isn't for everyone, any individual who thinks they are at risk of getting HIV should have easy access to it, without judgement.

We are fed up with Gilead's abusive pricing of its near monopolies in drugs that treat and prevent HIV. Truvada as PrEP was not their idea, and came to market based on research they didn't pay for. Gilead's PrEP profiteering must end. Full access to lifesaving drugs has been a hallmark of our movement, and we will join with AIDS activists across America and around the world to double-down on this push for health equity.

PrEP, along with condoms, TasP (Treatment as Prevention), and better access to healthcare, are now essential public health tools in lowering HIV infections among gay men and trans women. We must use every tool necessary to help them - and to help all those at risk - stop this virus, once and for all.

ACT UP, Fight Back, Fight AIDS.

Larry Kramer
Jim Eigo
Matt Ebert
James Krellenstein
Peter Staley

WATCH Dec 1 HBO/VICE Special on AIDS Cure Research & PrEP

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Tune into HBO on World AIDS Day, December 1st, at 9pm Eastern, for Vice.com's Special Report: Countdown to Zero. Here's the trailer, and also a teaser of my interview. Also interviewed: Tony Fauci, ACT UP's James Krellenstein, and TAG's Mark Harrington.




AHF Gets Smacked Down by South African AIDS Activists

| 6 Comments
AHF SA poster.jpg
AHF SF poster.jpg


The AIDS Healthcare Foundation (AHF), run by Michael Weinstein, is having a very bad week. AHF's various PrEP positions collided online, as Facebook users noticed their new PrEP-promotion posters in San Francisco (on the left), at the same time they continued their anti-PrEP campaign in Africa, where they got completely smacked down while trying to say PrEP was an impending healthcare disaster (conference poster on the right).

Americans will recognize Weinstein's "healthcare disaster" language, which he's used here in recent years in a failed attempt to thwart PrEP's roll-out. It seems he's thrown in the towel in San Francisco, as the city's HIV infection rate keeps falling at an even faster rate than previous years. Not wanting to miss out on SF's flood of new PrEP prescriptions (and potential Gilead grants!), Weinstein is now pretending to play along with a community that has never been easily fooled.

What the increasingly Duesbergian Weinstein is attempting to do in Africa is even more disgusting. More than 330,000 lives were lost in South Africa between 2000 and 2005, when then president Thabo Mbeki blocked the roll-out of lifesaving AIDS drugs based on an anti-science conspiracy theory called AIDS Denialism (which claims that HIV is not the cause of AIDS). A researcher named Peter Duesberg started the movement back in the 1980's, and AIDS activists have been fighting this scourge ever since. 

AHF is now spreading Weinstein's anti-science views about PrEP in Africa, before a single pill has been dispensed. Once again, African lives will be lost because of the anti-science ravings of an arrogant American.

AIDS activists won't be caught off guard this time around, and they just started pushing back hard against AHF. During yesterday's opening session of the 7th South African AIDS Conference, the president of the International AIDS Society, Dr. Chris Beyrer, slammed AHF's "PrEP Denialism" (see the third bullet in his slide below).

SA slams AHF.jpg

By the end of the day, local AIDS activists had issued a strongly worded statement demanding PrEP for South Africans, and trashing AHF's dangerous rhetoric:

We, South African advocates, are alarmed to see the AIDS Healthcare Foundation (AHF), an American-based chain clinic and pharmacy that has led the charge in PrEP Denialism, participate at the Durban Aids Conference. The AHF has consistently opposed PrEP using faulty science and fear mongering and has failed to accept extensive research that has clearly and repeatedly shown PrEP to be safe and efficacious. South Africa can only allow evidence-based health policy and implementation. Denialism thrown in the face of facts and research can never be allowed again. As South Africans, we know too well the human cost of misinformation about HIV and of waiting too long to implement life-saving, evidence-based HIV interventions.

By hitting back early, South African AIDS activists have successfully limited any damage Weinstein can cause there. But they should be prepared for the inevitable pivot by AHF-SA. Once grant programs get launched for PrEP, AHF's pro-PrEP posters will quickly follow.

From Baptist Minister To AIDS Activist, From Renegade To Leader

| 3 Comments
Charles King

Fair warning -- for those of you who hate hero worship, you best skip this post. Over the last couple of months, I've developed a major activist crush on someone who's definitely not new to the fight against AIDS. Frankly, I've been humbled by the experience, being able to witness up close the remarkable skill and grace of a man who I now consider our country's greatest AIDS activist.Charles King is the President and CEO of Housing Works, and along with Mark Harrington (TAG's Executive Director), the impetus behind New York Governor Andrew Cuomo's push to end epidemic levels of HIV/AIDS by 2020.

I've known Charles since the early ACT UP years. He joined about a year after I did, and had a unique background, having graduated from Yale Divinity School. His father was a fundamentalist evangelical minister, and Charles became a Baptist minister in his twenties. My first memories of him were when we both joined the small, risk-averse ACT UP contingent that went to New Orleans to protest during the 1988 Republican Convention, with Reagan, Bush and Quayle.

He joined our Housing Committee after that, which led to his co-founding of Housing Works. The birth of what's now one of New York's most impactful AIDS service organizations was thankfully the only time I've ever butted heads with Charles, and I'm forever thankful I lost that skirmish. He came to the floor of ACT UP asking for seed-money for Housing Works. I was head of the fundraising committee at that point, and was worried about the precedent. ACT UP rarely had much in the bank, and we had never given a grant to another group. I thought we needed every dollar we had, so I foolishly opposed the proposal. I lost (in a lopsided vote, as I recall). Charles, and AIDS activism, won.

By the late 1990's, Charles was in full renegade mode. Housing Works was at war with Mayor Giuliani, especially after his administration cut-off $6.5 million in city grants to the organization (see "Charles King's Holy War" from New York Magazine, 8/17/98). AIDS activists loved him for his epic fights with Giuliani, but the dirty little secret was that few of them leaped to his defense. He had earned a reputation of "not working well with others," to put it kindly. I would often hear from fellow activists "Charles is crazy!" Crazy or not, he usually won his battles with Giuliani, and Housing Works has now become a model agency combining service and advocacy that few other AIDS groups rival.

That combination of service and advocacy has also given Charles a knowledge base that few other activists rival. He knows the system inside and out, including how to change it when fixes are needed.

I never personally witnessed his crazy phase, if it existed, but the minister is back, with the wisdom only hardened fighters learn. There is love in his activism, and an understanding that we are all flawed but have voices and experience worthy of notice. Show me an "activist" that only sees their colleagues and adversaries in camps of good and evil, and I'll show you an ineffective advocate for change.

Charles gets this, and his effectiveness has been snowballing. I watched him co-chair the governor's AIDS task force, with its 64 highly-opinionated members, insanely tight schedule, and hundreds of community recommendations. His leadership was calm, focused, and brilliant. We got the job done. Watch his closing remarks below at the task force's last meeting. After the requisite political thank-you's, he reminded all of us why we're in this fight, and of the ghosts that push us onward. And then he remembers a former adversary, the governor's father, Mario Cuomo, who died on January 1st. He finds his goodness, and even a respect for the man's legacy in this fight. Cynics will sneer, but they won't be the ones that end this epidemic.

After you watch the video, take some time to read the ACT UP Oral History Project interview where Charles talks at length about his life and activism. If you don't get choked up by the moment that sparked his coming out, then you don't have a pulse.

Ebola vs. AIDS, Obama vs. Reagan

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Obama vs Reagan

Compare and contrast: Ebola vs. AIDS, Obama vs. Reagan. Anyone who continues to defend President Reagan's response to AIDS is ignoring a history of gross negligence compared with the response to other disease outbreaks in the U.S.

Here's the first time President Obama's press secretary was asked about Ebola, on July 30, 2014. Ebola had yet to reach U.S. shores, but two Christian aid workers from America had become infected in Liberia.
 

Q: Is the President being briefed on the Ebola outbreak in Africa? And will it be addressed at the Africa summit and/or alter the Africa summit in any way?

MR. SCHULTZ: Yes, we continue -- well, no, it will not alter the summit, but we do continue to monitor the outbreak of the Ebola virus in Guinea, in Liberia, Sierra Leone and Nigeria closely. The President is indeed receiving regular updates, including speaking with his Homeland Security and Counterterrorism Advisor Lisa Monaco as early as yesterday before departing Washington.

The U.S. government, including the Departments of State, Health and Human Services, Centers for Disease Control, USAID and the Department of Defense, continue to provide a range of support and assistance to those countries and multinational organizations responding to the outbreak.

This includes the provision of personal protective equipment and other essential supplies, public health messaging and technical expertise. We've actually been engaged in this outbreak since March.

The press waited until Oct. 15 , 1982 -- 17 months after the first reported AIDS cases -- to ask President Reagan's press secretary about the "gay plague." By that time, there had been 593 reported cases in the U.S., and 243 deaths.
 

Q: Larry, does the President have any reaction to the announcement -- the Centers for Disease Control in Atlanta, that AIDS is now an epidemic and have over 600 cases?

MR. SPEAKES: What's AIDS?

Q: Over a third of them have died. It's known as "gay plague." (Laughter.) No, it is. I mean it's a pretty serious thing that one in every three people that get this have died. And I wondered if the President is aware of it?

MR. SPEAKES: I don't have it. Do you? (Laughter.)

Q: No, I don't.

MR. SPEAKES: You didn't answer my question.

Q: Well, I just wondered, does the President --

MR. SPEAKES: How do you know? (Laughter.)

Q: In other words, the White House looks on this as a great joke?

MR. SPEAKES: No, I don't know anything about it, Lester.

Q: Does the President, does anybody in the White House know about this epidemic, Larry?

MR. SPEAKES: I don't think so. I don't think there's been any --

Q: Nobody knows?

MR. SPEAKES: There has been no personal experience here, Lester.

Q: No, I mean, I thought you were keeping --

MR. SPEAKES: I checked thoroughly with Dr. Ruge this morning and he's had no -- (laughter) -- no patients suffering from AIDS or whatever it is.

Q: The President doesn't have gay plague, is that what you're saying or what?

MR. SPEAKES: No, I didn't say that.

Q: Didn't say that?

MR. SPEAKES: I thought I heard you on the State Department over there. Why didn't you stay there? (Laughter.)

Q: Because I love you, Larry, that's why. (Laughter.)

MR. SPEAKES: Oh, I see. Just don't put it in those terms, Lester. (Laughter.)

Q: Oh, I retract that.

MR. SPEAKES: I hope so.

Q: It's too late.

(Crying.)

Anti-PrEP Scare Tactics

| 6 Comments
Secret App

Anti-PrEP hysteria is hitting new lows, with attempts to frighten early adopters of Truvada PrEP, the pill that is highly effective at blocking HIV infections. In what almost became a story in The New York Times, someone used the new and highly popular social media app called "Secret" to freak out its many gay users. He claimed that after using PrEP every day for over six months, he had just tested positive for HIV, and he included lots of specifics about his testing history and current doctor visits. 

"Secret" is an app that allows users to anonymously post and comment on anything, kind of like Facebook stripped of actual usernames. This particular "secret" quickly generated over 100 comments, like "how is that possible," "bullshit," and "I'm on PrEP too, so I hope this isn't true." He was peppered with many worried questions, and answered them in detail over the next few days. Alas, one of those details made the entire story hard to believe. Two days after getting the news, he supposedly returned to his doc for follow-up test results, and was told he'd been "infected with a non wild strain ... resistant to Tenofovir and Emtricitabine" (the two anti-HIV meds in Truvada).

But here's the rub -- a phenotype or genotype HIV resistance test takes at least one to two weeks before the results come back. Guess he missed that fact when he Googled "Tenofovir and Emtricitabine" (correctly spelled, which would be a first for someone jotting down drug names at a doctor's office).

A few days later, the guy deleted the entire thread, which included inquiries from a Times reporter. Damage done.

Think that's scary? How about the next plague that's coming, or could even be spreading now (right now!) by all those condomless PrEP users? This particular scare tactic is appearing online with increasing frequency. It's based on an unavoidable truth -- mankind will indeed encounter new pathogens that cause disease, even widespread death. When will the next animal virus out there make the leap to humans, and how much damage will its mutations cause? Want to avoid the next plague? Wear condoms!

The problem with this scare tactic is that its prescription doesn't make sense. Until we identify the next deadly pathogen, we won't know which prevention methods work against it. That's why the scientific community preaches heightened detection and reporting as the rational public health response to future pathogens. We have to find them early, and then react quickly. How will a condom prevent a super-virulent swine flu virus? What if the next killer is more like HPV than HIV, and spreads easily via oral sex and vaginal sex? 

In other words, why aren't those screaming at gay men to wear condoms to avoid the next plague also insisting that straight people always use condoms? Shouldn't the world quickly set-up test-tube baby clinics, since the standard means of procreation (condomless sex) could spread the next mass killer? 

Of course not, and you'll never hear the next-plaguers suggest this. Isn't it interesting that their only prescription is that gay men, and only gay men, need to abandon condomless sex forever? Can you say self-loathing? 

As for fighting our current plague, I've said it before, so I'll say it again:

"While the gay men who moralize and finger-wag will most definitely slow us down, AIDS activists and their public health allies will ultimately win this war. So if you're fighting the good fight, and getting any stigmatizing pushback, then push ahead even harder. Give a good smack to that finger in your face, ignore the moralizing idiots online, and find strength from your allies in this fight. And know this -- when this crisis is finally over, there will be two kinds of people remembered: those who fought to end it, and those who slowed us down."

25 Years Ago: ACT UP's AIDS Treatment Research Agenda

| 3 Comments
Peter Staley Montreal AIDS Conference 1989
ACT UP's press conference at the International AIDS Conference in Montreal, June, 1989

25 years ago today, the Fifth International AIDS Conference closed in Montreal, and AIDS activism changed forever. The white coats -- the medical establishment that controlled our destinies -- realized they could no longer ignore us. People living with HIV and their fellow advocates pushed their way into the conference (literally, during the opening ceremony), and came armed with a sophisticated analysis of the sorry state of AIDS treatment research.

ACT UP New York's Treatment & Data Committee released a fifteen page report titled A National AIDS Treatment Agenda that wowed the researchers in attendance. I have so many powerful memories from that conference, but one, completely-unrecorded event stands out. If the annual international AIDS conferences had "A-Lists," then the must-attend A-lister event each year was always amfAR's big invitation-only reception. Since most of the T&D boys had slept with many of amfAR's young staffers, we easily procured some invites. As I worked the room, it became obvious that everyone was buzzing about ACT UP's report. I circled back to Mark Harrington, and we marveled at what felt like a pivotal moment for AIDS activism. We had no only demanded a seat at the table, we had earned it.

To my knowledge, the report has never been posted online. I've uploaded a PDF version here.

Tomorrow, at a meeting at the CDC, ACT UP will be releasing another document titled The Atlanta Principles, which will offer an analysis of what's wrong with today's HIV prevention efforts, and a plan for fixing them. With new infections tragically stuck at almost 50,000 a year in the U.S. -- a statistic that hasn't budged since the early 1990's -- it's a national disgrace that we've never tackled preventing HIV, like we did with treating it. Mark my words, that's about to change.

Undetectable = Uninfectious

| 6 Comments
We are not infectious, or dangerous, or criminals.

"The main news is that in the PARTNER Study so far there have been no transmissions within couples from a partner with an undetectable viral load, in what was estimated as 16,400 occasions of sex in the gay men and 14,000 in the heterosexuals."

risk
Please read about this newly released study:



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