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One Small Step To Help AIDS Activists


Make your voice count, take this survey!
I'm very psyched about what POZ and AIDSmeds have been up to over the past year, building partnerships with AIDS advocacy groups. For instance, we're working closely now with NAPWA, the National Association for People with AIDS. With our reach (the number of people living with HIV that read our magazine and websites), and their activists, we can leverage the voices of all us living with this virus.

Towards that end, we need your help to improve the main government program that affects our lives. The Ryan White Comprehensive AIDS Resources Emergency (CARE) Act is the largest federal program dedicated to providing care and treatment for people living with HIV. The CARE Act has been hugely successful in helping HIV-positive people live longer, healthier and productive lives, but Congress must take action on it this year if it is to continue serving more than half a million people every year in the United States.

POZ/AIDSmeds have joined with NAPWA and the American Psychological Association (APA) to ensure that important mental health services are well funded when the CARE Act is again reviewed by the U.S. Senate and House of Representatives in 2009. We're starting with a survey that will help guide our advocacy efforts.

Many people living with HIV have psychological difficulties, including depression and substance abuse. To ensure that our mental health needs are adequately addressed, we need your input. Your participation in this survey will not only help improve services you may need, it will also help thousands of others living with HIV.

You do not need to identify yourself in this survey and all of your responses will remain anonymous.

I just completed the survey myself, and it only took 7 minutes. Please join me by clicking the survey button below. Together, our voices will be heard.

Peter on:


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Comments on Peter Staley's blog entry "One Small Step To Help AIDS Activists"

Find me any human in the world over 40 who doesnt answer yes to the first four questions in Question 4.
Good luck getting taxpayer money for that one but than again everyone else is, so go for it.
Buy Gold,canned goods,and guns.

Mental health parity is something that needs to be addressed in the Ryan White Care Act. It's been flat funded and underfunded for so many years now. I'm glad Poz and AIDSMeds are joining with NAPWA in the reauthorization "battle". Each time it comes up for reauthorizatio we're told the same story, "We don't have the money". This is going to be a tough year to ask for an increase in funding (since our country is bankrupt). We need a strong and deliberate strategy. We've certainly got our work cut out for us. Ryan White is a DISCRETIONARY program and this type of funding is the first thing that gets cut. Perhaps if Obama and Congress implements a "National AIDS Strategy", this will become a "MANDATORY" program.

i sent the survey link to bryan levinson- the founder of Strength In Numbers. I think he then posted it as a general SIN post nationally...


I was most displeased that the obvious assumption is if someone has HIV and also has mental health issues that those two things MUST be related. I would have liked to have been able to participated in this questionnaire but I refuse to have my depression & bi-polar issues laid at the feet of my HIV infection. As they have absolutely nothing to do with each other. I have had neither mental health issues as a result of my HIV nor any difficulties adjusting to my situation. Any anxiety difficulties had more to do with not being able to get onto social security disability in a timely fashion. How can anyone learn what is needed in services if the right questions are not asked had it even been possible to add in ones own words further information that would have made it possible to clarify the standard answers that would have gone a LONG ways toward solving my problem with this poorly designed questionnaire.

A poor survey. Substance abuse is what it should be called. Not all of us use/abuse. This misses the vast majority of people and only centers on an area that already has funding programs for abusers. A waste of my time, the tax payers money and the time Congress may look at it.
The people at POZ are talking to the wrong people to make an adequate or meaningful survey.

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About this Entry

This page contains a single entry by Peter Staley published on January 29, 2009 8:20 AM.

America's Most Influential AIDS Treatment Activist Dies was the previous entry in this blog.

A Proactive CDC – Just a Pipe Dream? is the next entry in this blog.

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